My Voice Matters: The DISCOVER Programme

My Voice Matters: The DISCOVER Programme

My Voice Matters: Kay’s Story

It’s Children’s Mental Health Week and the theme of this year is My Voice Matters. The theme is all about empowering children and young people by providing them with the tools they need to express themselves.

This is Kay*. She took part in the DISCOVER programme, which is an award-winning schools-based workshop programme supporting 16-18 year olds to manage stress and worry. The DISCOVER team is based at South London and Maudsley. This week, she’s using her voice to support others.

Kay acknowledges that she used to be reluctant to open up, instead preferring to deal with things on her own. When her mum sadly passed away, she found it even more difficult to talk to people about her loss, and kept her feelings to herself. She thought that withholding her voice would mean protecting herself, and others too, from her pain. However, this left her feeling low, isolated and unable to focus on other things.

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I’ve always liked to be independent…I don’t like asking people for help.

Kay signed up to the DISCOVER programme after an assembly at her school advertising the workshop and how it could be helpful. It was in a 1:1 meeting with a member of the DISCOVER team that she first decided to ask for help. Although her family, friends and teachers were aware of her bereavement, they were not fully aware of how it had impacted her. In addition, she was feeling a lot of pressure to succeed at school, and was staying up late working, not getting enough sleep, and not taking any breaks to recharge.

You’re not alone. Genuinely, you’re not alone.

Everyone who comes to a DISCOVER workshop set themselves a goal to work on for the following three months, and are supported by a DISCOVER clinician to achieve their goals. Kay chose to ‘stop overthinking and think positively’ by practicing mindfulness regularly and making more time for herself and her hobbies. The programme helped her to feel listened to and she learnt to use her voice to open up more to others. This helped her value other people’s support, and their perspectives on her problems and to be kinder to herself.

With the right support and help, you can get through it.

As part of their commitment to person-centred care, DISCOVER continuously evaluate their work with young people. We use student feedback forms, online surveys and representative advisory groups to ensure that DISCOVER stays relevant, accessible and impactful for young people. In a project that we ran recently, to seek young peoples’ feedback on existing DISCOVER sessions, a clear message arose: enhance the student voice. ‘They felt that while DISCOVER’s tips for stress and anxiety management were useful and clear, they were more motivated to try them out if relatable peers could vouch for them and show how these ideas could be applied to the real lives of young people. 

DISCOVER subsequently set out to develop new videos that portray a diverse range of experiences, using the exact words of young people. Kay was a willing advocate for this project and volunteered her voice once more, in the hope that it would inspire others experiencing any kind of loss to reach out for support. Her voice represents that of thousands of others voices who take part in the DISCOVER programme each year, and who have shaped the service into what it is today.

 *Kay is a pseudonym used to protect her anonymity. In the video, her words are spoken by an actor.

Dr Philip Shaw announced as new Director of King’s Maudsley Partnership for Children and Young People

Dr Philip Shaw announced as new Director of King’s Maudsley Partnership for Children and Young People

Dr Philip Shaw announced as new Director of King’s Maudsley Partnership for Children and Young People

As Director of the King’s Maudsley Partnership for Children and Young People, Dr Shaw will be responsible for driving clinical and research excellence to improve outcomes for children and young people.

a young girl holding a leaf

We are delighted to announce Dr Philip Shaw as the new Director of the King’s Maudsley Partnership for Children and Young People, taking up the role from October 2024. Based in South London at the Pears Maudsley Centre for Children and Young People, the work will benefit local communities with impact and collaborations nationally and globally. Dr Shaw was part of an interview process that included input from a panel of young people.

The issue of children and young people’s mental health is one of the most significant health and societal challenges today. Long waiting lists for mental health services cause long term impacts on children, young people, and their families, so early identification and intervention is key to seeing long term benefits. The ultimate driving force behind our Partnership is a desire to enable future generations of children to enter adulthood leading happier, healthier lives.

“I am thrilled to be joining the Partnership next year and to have the opportunity to lead a centre of such significance and potential.  I look forward immensely to working with research and clinical colleagues and those who receive care at the Pears Maudsley Centre, their families and the local community. As a psychiatrist working with children and families in the clinic as well as having researched ADHD for many years, the chance to investigate, develop and offer new, and potentially life-changing interventions for young people is the driving force behind my work. By bringing together young people, their families, clinicians and researchers, we aim to gain a deeper understanding of challenges to mental health, and to provide innovative, effective new treatments and approaches to care.”

Dr Philip Shaw

Director of the King's Maudsley Partnership

A member of both the Royal College of Physicians and the Royal College of Psychiatrists, Dr Philip Shaw is currently a Senior Investigator at the Neurobehavioral Clinical Research Section of the National Human Genome Research Institute, part of the National Institutes of Health (NIH) in the United States. His key interest is in the genetic and environmental factors that influence the development of brain and behaviour, focusing on attention deficit hyperactivity disorder.

He is both a researcher and a clinician who works with families to translate neural and genomic discoveries into tools that can help predict the likely adult outcomes of childhood ADHD. His group is also developing novel treatments, delivered in virtual reality, that respond to a young person’s individual profile of cognitive strengths and challenges.

“Dr Philip Shaw is uniquely placed to draw on and bring to the partnership his experience enabling scientific and clinical communities to collaborate to catalyse breakthroughs and support the study and treatment of children and young people’s mental health and neurological disorders. As a former alumnus of King’s it is heartening that he is returning to undertake such a crucial role in children and young people’s mental health here.”

Professor Shitij Kapur

Vice-Chancellor & President of King’s College London

Dr Shaw trained as a psychiatrist at the Maudsley, has been a lecturer at the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) and completed a fellowship in child and adolescent psychiatry at the New Childrens’ Hospital in Sydney, Australia. He has degrees in experimental psychology and medicine from Oxford University and received a Ph.D. in psychological medicine from the former Institute of Psychiatry, now IoPPN, King’s College London.

“I am delighted that Dr Philip Shaw is joining the King’s Maudsley Partnership. Through Dr Shaw’s vision and expertise, and with the support from philanthropists and the public we can improve mental health outcomes for young people and their families now and for the future – the Pears Maudsley Centre is the physical embodiment of that vision.”

David Bradley

Chief Executive Officer, South London and Maudsley NHS Foundation Trust

The King’s Maudsley Partnership is a unique partnership between South London and Maudsley NHS Foundation Trust and King’s College London’s Institute of Psychiatry, Psychology & Neuroscience, with Maudsley Charity as its charity partner, that will see researchers and clinicians working more closely together to find new ways to predict, prevent and treat mental health disorders for children and young people, and maximise translation of research and evidence into improved services, locally but also nationally and globally.

It will have its home at the new Pears Maudsley Centre for Children and Young People, a £70m purpose-built centre that will include an in-patient adolescent unit, and a child and family friendly research facility with cutting-edge imaging methods, virtual reality and a digital lab. The centre has been designed with input from young people and their families alongside clinicians and researchers to provide a welcoming and therapeutic environment conducive to clinical research and clinical excellence.

“We are looking forward to welcoming Dr Phillip Shaw. As a psychiatrist with incredible clinical and research experience he is uniquely placed to help realise the vision of the partnership. The work of the partnership, based in the Pears Maudsley Centre for Children and Young People, will transform knowledge and understanding of young people’s mental health and reduce the time it takes to bring new treatment to patients that can improve their lives.”

Rebecca Gray

Chief Executive of Maudsley Charity

The new Pears Maudsley Centre for Children and Young People is set to open in 2024 and will provide world-leading mental health support to young people. This collaboration between the IoPPN, South London and Maudsley NHS Foundation Trust, and Maudsley Charity will transform the treatment and care of children and young people in the UK and across the globe.

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IoPPN researchers celebrate wins at the ACAMH Awards 2023

IoPPN researchers celebrate wins at the ACAMH Awards 2023

IoPPN researchers celebrate wins at the ACAMH Awards 2023

The ACAMH Awards recognise work of exceptional quality in the discipline of child and adolescent mental health.

a young girl holding a leaf

Researchers from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) won awards and commendations at the Association for Child and Adolescent Mental Health (ACAMH) Awards ceremony on 9 November 2023. To be nominated for an ACAMH Award is a prestigious recognition of those who are at the forefront of the advancement of child and adolescent mental health research, and practice.

Digital Innovation Award for Best Digital Intervention

Dr Johnny Downs was announced as winner of the Digital Innovation Award at the ACAMH Awards Ceremony. This award is presented to a clinician who has put evidence base into practice within the information technology and digital fields of child and adolescent mental health.

I feel incredibly honoured to receive this award from ACAMH, although naming me as individual belies how much of the work is driven by the team I’m a part of. I am so grateful to my wonderful colleagues at the CAMHS Digital Lab, who are driven by a shared mission to enhance the access and engagement of evidence based mental health interventions for children, young people and their families, and crucially, support CAMHS practitioners and make their working lives better.

I do want to say a very special thanks to my colleagues: Dr Alice Wickersham, Craig Colling and Jess Penhallow who are wonderful to work with, and who mischievously submitted this nomination without my knowledge. And finally thank you to ACAMH, who through this award category highlights those who do important interdisciplinary CAMH research and practice using mental health digital interventions. I would urge everyone to look all the nominees for this category, and great work they are doing.

Dr Johnny Downs

Senior Clinical Lecturer (Honorary Consultant) in Child & Adolescent Psychiatry at IoPPN

Dr Johnny Downs is an NIHR Clinician Scientist at the Department of Child & Adolescent Psychiatry and Child and Adolescent lead, Centre for Translational Informatics. His research focuses on the use of digital information for epidemiological studies examining risks factors and outcomes for childhood neurodevelopmental and mental health disorders. Dr Downs is the founding lead of the CAMHS Digital Lab with the NIHR Maudsley Biomedical Research Centre and is a co-investigator at the NIHR Children and Families Policy Research Unit.

Research Trainee of the Year Award

The Research Trainee of the Year Award was presented to Dr Genevieve Morneau-Vaillancourt, from the school of Mental Health and Psychological Sciences at the IoPPN. This award is given to a trainee or student who is less than two years post PhD and who has shown initiative or made a significant contribution to child and adolescent mental health.

“I feel very honoured and privileged to receive The Research Trainee of the Year Award from ACAMH! I have the privilege of working with fantastic colleagues from the EDIT lab, TNG lab, and TEDS team at the SGDP Centre. I am lucky to be supported by great mentors, particularly Professor Thalia Eley, who inspires me and has taught me so much about research, making important decisions as an early career researcher, and managing work-life balance in academia. This award is a fabulous recognition of the work I have conducted along with my colleagues on the role of peer relationships in driving risk for mental health problems in children and adolescents and will support me in further examining these questions using different genetic approaches. Huge congratulations to the other nominees!

Dr Genevieve Morneau-Vaillancourt

Post-doctoral Research Fellow at IoPPN

Dr Genevieve Morneau-Vaillancourt is a Post Doctoral Research Fellow whose research interests include understanding why some children and adolescents suffer from persistent anxiety and depression and which factors exacerbate these internalising problems over time.

David Cottrell ‘Education of CAMH Professionals’ Award

Dr Mark Kennedy was highly commended in the category of Education of CAMH Professionals Award, an award which focuses on professionals having a significant impact upon the education or training of those working in child and adolescent mental health care.

“Firstly I’d like to say a big thank you to those who contributed to the course and to all the students on it. Also, I would like to say a huge congratulations to the winners and other nominees for their inspiring work.”

Dr Mark Kennedy

Lecturer in Mental Health Education at IoPPN

Dr Mark Kennedy is a Senior Teaching Fellow as part of the Child and Adolescent Psychiatry Department at the IoPPN in the School of Academic Psychiatry. He was also a researcher on the English and Romanian Adoptees (ERA) study at King’s College London. His work has focused on the developmental outcomes of extreme early adversity, including ADHD/neurodevelopmental disorders, attachment and mental health.

Further IoPPN researchers were shortlisted for awards: Ms Alice Stephens for Digital Innovation Award for Best Research on Digital Impact, Miss Emelia Pasternak-Albert for Clinical Trainee of the Year Award and the SPARK Research Team for Innovative Research, Training or Practice in Low and Middle Income Countries.

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Change the Story: Nina’s Story

Change the Story: Nina’s Story

Change the Story: Nina’s Chapter

Our CAMHS inpatient ward – The Maudsley Adolescent Unit (MAU) is an open unit offering mental health care for young people with serious mental illness such as psychosis or problems relating to their mood and require hospital admission. We have developed a national and international reputation for innovation and pioneered the introduction of a comprehensive, all-hours emergency admission service.

Within this unit, individuals such Nina, are the driving force behind our efforts to support and nurture the mental health of the next generation. Their commitment forms the very core of our Partnership. In this spotlight, Nina tells her story on how her team went above and beyond to support a young person to attend college from an inpatient CAMHS ward.

Nina

Nina

Ward Manager, CAMHS PICU

Young people admitted to inpatient CAMHS wards usually attend the on-site hospital school. The school is independent of the hospital and is run by Southwark council and staffed by an incredible group of teachers and support staff. They work with young people at various ability levels and support young people who are just starting secondary education, right up to young people who sit GCSE and A-Level exams whilst in hospital. However, fantastic as the school is, sometimes they aren’t able to provide the exact course a young person wants to do. Previously in these instances we may have encouraged a young person to look at alternative courses; ones which the hospital school could support them with. Or suggest doing different courses for a year and applying to the one they really wanted next year. However, over the summer we spoke with one particular young person on the ward and realised that this approach didn’t really work for them and wouldn’t be supporting them to achieve what they could.

This young person had been an inpatient with us for a number of months. Due to this she sat her GCSE exams at the hospital school at the Maudsley. During this period, she was also able to meet with a careers advisor at school to begin thinking about what she wanted to do post-16, as well as more long term. As a nursing and education team, we also began thinking about how we could support her with achieving her goals. She told us that her ultimate goal was to train as a nurse and work in healthcare; so, we started looking at what she would need to do to start on that path. After lots of conversations she decided that a college course in health and social care would be the best next step.

During evenings and weekends (when not revising for her GCSEs!) she began looking up different colleges and the courses they offered. Staff on the ward gave her advice on her applications and her parents were able to take her to some open days to meet with college staff. After a lot of work she found a college in South London that felt like the best fit for her and applied. Then following her fantastic GCSE results she officially enrolled in August!

Despite all the incredible work she had done towards getting her college place, the young person wasn’t able to be discharged before it started; and so, we began thinking about how best to support her to attend. Everyone was agreed that we wanted her to start college and that doing a course she was passionate about was so important. We were also conscious of not making too many big changes at the same time, so we all agreed that starting to attend college from the ward first made the most sense. We were really keen (as was she!) to make this as ‘normal’ as possible whilst ensuring she had all the support she needed.

We suggested doing some practice journeys between the ward and her college before her first day. Ray, an activity support worker on the ward, met with her to look up the route on public transport and plan the journey. The two of them the caught the bus there together to get familiar with the journey and where to go once she was at the college campus. Since then, she’s been attending all of her classes at college, and has begun making her own way there and back each day.

It was a tricky journey to get there at times, and the easiest solution all those months ago would have been to say the young person needed to be discharged before going to college full time. However, we all knew this wasn’t the best solution for her at the time; and we wanted to make sure we were thinking of what was important to her and doing whatever we could to support her in safely achieving those goals.

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Change the Story: Lauren’s Chapter

Change the Story: Lauren’s Chapter

Change the Story: Lauren’s Chapter

In the tapestry of any organisation, there are threads woven with extraordinary dedication and tireless effort. These threads belong to individuals who go above and beyond, turning ordinary tasks into extraordinary achievements. Their commitment, often behind-the-scenes, is the bedrock upon which success is built.

In this spotlight, we shine a well-deserved light on those who exemplify the spirit of hard work and dedication. These individuals are the driving force, the unsung heroes, and the heartbeat of our organisation and our shared vision to transform mental health for young people.

Their stories inspire us all to reach for greater heights, reminding us that with perseverance and determination, remarkable accomplishments are within our grasp.

Lauren

Lauren

Nurse, CAMHS PICU

Within inpatients CAMHS services we do out upmost to support the human rights and well-being of our service users while also maintaining safety. This can take many forms from supporting someone to bake a cake to gradually building up periods of leave back to their family home.

 One of our service users was struggling to find meaningful goals to work towards to help motivate them to remain safe while on the ward. As they had been in hospital for a considerable period there was a feeling that they felt hopeless in the idea that any meaningful progression could be made.

Across the ward multidisciplinary team (community teams’ input, family and social care), we wanted to do something to uplift their mood and positivity. A goal was set for the service user to be supported to attend their first ever concert. Due to the young person’s love and passion for music this felt like a meaningful activity for them as well as being something that was age appropriate and a ‘normal’ yet exciting milestone of adolescence. I’m sure most people can still remember their first gig, concert or festival as a teenager.

Within the team a week-by-week plan roughly spanning eight weeks was put in place to attempt to support the young person to achieve their overall goal. This was then reviewed each week and decided if the young person as ready to progress onto the next stage and if not, what things could be put in place to support each stage to be completed to help facilitate the overall aim. As the young person progressed further through the stages other challenges did arise such as who was going to take them? How would we transport them? and logistics around what time would they take their prescribed medication etc. This took a lot of coordination within the team and with the family, but each hurdle was overcome, and the day of the concert arrived.

This was a particularly unique experience as although within other services day trips are slightly more commonplace within a PICU setting they are often far from the norm. However, it was felt that for this young person this would be an important step in helping reintegrate them back into the community and so the team all worked together to ensure it took place. Being part of the team that accompanied them to this concert was a special experience as the young person could not quite believe they had managed to keep themselves safe enough for the trip to take place as well as having all the same excitement any person would have of seeing one of their favourite artists perform.

A new outfit from Primark, make-up applied, and McDonald’s consumed en-route made it feel all the more like an adolescent night out. Seeing anyone enjoy a new experience for the first time is exciting but when you have been part of the challenging journey with a young person of them keeping themselves safe enough to achieve their goals, it is a special experience.

Although one also full of anxiety as you imagine all the possible dangers and things that can go wrong. (We had tried to mitigate and plan for some of these by making sure the young person was aware we could leave if it all felt overwhelming) That aside when it all goes to plan to take a positive risk and seeing the joy it can bring to an individual is without a doubt the best part of the job.  

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‘Onwards and Upwards Parenting workshops’

‘Onwards and Upwards Parenting workshops’

‘Onwards and Upwards Parenting workshops’

Our Helping Families Team provides a comprehensive and supportive service for parents facing complex mental health issues as well as other stresses that my include poor housing, financial instability and chronic ill health. Multiple challenges can impact on their ability to look after themselves and their children and prevents them from parenting in the way they would like to. The team supports parents to reconnect with their children, feel more confident as a parent and to navigate the relationships they have with professional networks supporting their family.

Funded by Maudsley Charity’s Change Maker scheme, their latest programme promotes peer-led parenting workshops facilitated after parents have completed the Helping Families Programme and they have been discharged from the service. The events support parents to feel equipped with the necessary tools and support they need to overcome the challenges they face, without the need of another referral to specialist services.

How do the Helping Families Team support parents?

 We work with parents to identify their strengths and empower them so that they can communicate, manage their emotions, and hold the needs of their children in mind in ways which may feel more helpful, containing, and safe.  We have the privilege of witnessing their progress whilst they work with us. In these very difficult times it can be hard for parents to hold hope and continue to attend to their own needs in addition to the needs of their families.  The team explain how this peer- led programme is bringing together parents to create opportunities for social support and connection, and empower parents to create lasting, positive changes in their lives.

 What is the Change Maker Scheme?

 Change Makers exists to enable staff to complete small projects that could have a big impact on the quality of life for patients.  The scheme is a joint initiative between Maudsley Charity and the South London and Maudsley Trust’s Listening into Action (LiA) team. Maudsley Charity invests £100k into the scheme each year and the Listening into Action team will support staff to make applications, deliver the grants, and work with grant recipients to share the impact funding has had.

 The scheme is open exclusively to staff from the South London and Maudsley. Departments can apply of grants between £200 and £2,000 to get small projects off the ground in wards and services to improve access, outcomes or experience of people with mental illness. 

 How did the ‘Onwards and Upwards’ programme start?

 We consulted with parents that have used our service and responded to parents’ requests that they would really value the opportunity to connect with other parents with similar lived experiences and to also revisit specific parts of  the parenting programme that they had found helpful. With our Change Maker award we were able to hire space and provide food and refreshments for the parents in a beautiful historic local community venue which is easily accessible and offers a quiet, calm space. 

 We have facilitated three Onwards and Upwards events and we are planning to hold another in the Autumn. So far, 14 parents have attended, and the group is growing in strength and numbers.

 Has there been any feedback from the parents?

 The parents who attended expressed how important it was that they felt heard and seen during these events.  They valued the opportunity to share their experience of parenting before, during and after their time working with the Helping Families Team and felt able to speak freely and share their stories and experiences in ways which felt helpful and important for them.  Parents often lack confidence to connect with others but all who attended have created connections with each other outside the events.

 We kept events light and balanced. We had laughter along with tears. These events were designed to be empowering and validating for parents, delivered via a safe, nurturing environment where they could speak freely and share experiences and advice with other parents. Many of the parents that we work with are economically disadvantaged, so they really valued being cared for and feeling valued.

What do you hope for future events?

 In the future, we plan to invite their families along to a family-friendly event to celebrate their progress. We hope that the Onwards and Upwards events remind parents of the importance of continuing to prioritise their own needs alongside those of their families.  We know that parents who feel able to do this create very positive outcomes for their families.

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